The Awareness Alliance is collaboration between the International Children’s Palliative Care Network (ICPCN) and the Fondazione Maruzza Lefebvre D’Ovidio Onlus (Maruzza Foundation) aimed at increased awareness and access to children’s palliative care worldwide through advocacy and communication activities.
The ICPCN and Maruzza Foundation share the common vision of a world where palliative care is available to all children who need it and that specialised palliative care should the right of every child with a life-limiting condition.
Research has shown that an estimated 20 million children worldwide are affected by illnesses and conditions that threaten their lives or which will inevitably lead to death in childhood or early adulthood. Child-specific palliative care, providing flexible, holistic healthcare and support, provides the most appropriate solutions to the multiple care needs of this vulnerable population and their families.
This initiative was launched during the 2nd Congress on Paediatric Palliative Care – A Global Gathering held in Rome in November 2014. Speaking at the launch, Silvia Lefebvre D’Ovidio, of the Maruzza Foundation, said that it would be an honour to work together with ICPCN. She was very excited about the alliance as she felt that would be very important to achieve the vision of the two organisations. ICPCN’s Chief Executive, Joan Marston, commenting on the alliance said, “by working together, complementing each other’s strengths and building the global voice for children’s palliative care, we are a step further in reaching the more than 20 million children who need palliative care across the world.”