The Scientific Committee
FRANCA BENINI (Scientific Director)
Currently the Medical Director of the Paediatric Clinic and co-Vice Director of the PICU at Padua University Hospital, Director of the Veneto Regional Reference Centre for Children’s Palliative Care and Pain Management, she is also an Adjunct Professor for Paediatric Medicine at Padua University.
In 1981, Dr Benini graduated from Padua University with a degree in General Medicine and Surgery. She went on to specialize, at Padua University, in Paediatric Medicine (1985), in Anaesthesiology and Reanimation (1989), in Neonatology (1990), Pharmacology (1995) and, in 2004, she obtained a Masters degree Antalgic Therapy and Paediatric Palliative Care.
At the beginning of her career she accumulated a broad range of training experiences in Canada and the United States. Returning to Padua, she provided key support for the creation of the “Casa del Bambino” which she current Directs. It comprises a publicly funded children’s hospice/residential centre for the delivery of palliative care and pain management for children with incurable illness and a regional diagnosis centre for abused children. She is also the Veneto Regional Coordinator for the team specialised in children’s palliative care and pain management delivery.
She is the author of numerous published studies regarding the quality of life of children and families affected by incurable illness and with the delivery of effective palliative care and pain management for children living with serious illness.
Matteo Asti is a film historian. He’s a lecturer in Film studies and Media Studies at Accademia SantaGiulia and Università Cattolica del Sacro Cuore. His main research interests include the relationship between cinema and religion, the media representation of the end-of-life as well as media education. He organizes and takes part at many cultural and film events.
She is an affirmed, private Researcher in Comparative Law and a Lecturer in Bio-Law at the Law Department of Brescia University. She received her PhD with the highest grade from the Sant’Anna University of Pisa. She has published several books; ‘Self-determination in Healthcare‘ and ‘Choice and Science. Interface in healthcare and advance treatment provisions‘ (Giappichelli Editor), she has edited two other publications and written approximately seventy articles. She has also been a Plenary Speaker at numerous national and international conferences and seminars.
She is a member of the editorial board of the High impact magazine ‘Rome and America. The Journal of Integration and Unification of Law in Eurasia and Latin America’.
She is a member of the Scientific Committee of the Civil and Juvenile Courts in Brescia. She acts as a Peer-Reviewer for various scientific journals, many high impact. Her focus areas for research, study and teaching include; responsibility in healthcare, the beginning and the end of life, safeguarding health and individual choice with respect to the generally accepted treatment of the body.
MARIA LAURA CHIOZZA
Medical doctor with specialization in Pediatrics and Urology at the University of Padua and in Organization and Health Management for Doctors at the Luigi Bocconi University of Economics and Management in Milan.
She is currently the Director of the Structural Department of Human Resources and UOC Quality and Accreditation at Padua Hospital and a Senior Lecturer School in the Department of Medicine and Surgery at Padua University.
MARIA GRAZIA DE MARINIS
She is President of the three-year Bachelors Degree Course in Nursing and the Didactic Coordinator at Campus Biomedico in Rome.
LUCIA DE ZEN
Medico chirurgo specializzata in pediatria.
È Responsabile del Centro di riferimento Regionale di Terapia del dolore e Cure palliative pediatriche presso IRCCS Burlo Garofolo e coordinatore della Rete regionale. Membro del tavolo tecnico del Ministero della Salute per lo studio delle tematiche concernenti la terapia del dolore e le cure palliative pediatriche; componente del comitato etico per la pratica clinica dell’IRCSS Burlo Garofolo e dell’Azienda Sanitaria Friuli Occidentale (ASFO). È Autore di oltre 20 lavori pubblicati su riviste scientifiche nazionali e internazionali.
A medical doctor and surgeon, he specialized in Paediatrics in Pavia and in Rome, completing a Fellowship at the Children ‘s Hospital Medical Center of Harvard University in Boston.
He directed the Perinatal Clinical Research Center of the University of Yale (U.S.A.) for three years. He was Professor of Neonatology at the Universities of Naples, Sassari and Rome “La Sapienza”, with the Direction of the respective Clinical Divisions of Neonatology.
He directed the Neonatal Intensive Care Division and the Department of Medical and Surgical Neonatology of the Bambino Gesù-IRCCS Paediatric Hospital in Rome.
He was Italian Representative at the European Society of Perinatal Medicine and Member of the Board of Directors of the European Society for Paediatric Research and the Italian Society of Perinatal Medicine.
He was President and Past President of the Italian Society of Neonatology and of the Italian Society of Intensive Care and Secretary of the Epidemiology Section of the European Pediatric Research Society.
He is an Honorary Member of the American Society of Pediatrics.
He is President of the Bioethics Committee of the Italian Society of Pediatrics and member of the Technical-Scientific Committee of the Maruzza Lefebvre D’Ovidio Onlus Foundation.
He is the author of more than 330 scientific publications, many of which in prestigious high impact factor international journals, For many years he has been dealing with respiratory pathophysiology of neonates, the evaluation of perinatal care, the humanization of healthcare for neonates, bioethical problems in neonatology and paediatrics and the organization of paediatric palliative care services.
He is an independent Speaker on paediatrics, children’s palliative care and ethics.
His Native language is Italian but he also reads and speaks fluently English, French and Spanish.
Medico palliativista, è stato Direttore Scientifico della Fondazione Maruzza e Presidente della Società Italiana di Cure Palliative (SICP).
Docente nei Master di Cure Palliative nelle Università di Milano, Trieste, Torino, Parma e all’Università Cattolica del Sacro Cuore di Roma, ha insegnato: “Formazione e tutoraggio dell’attività di ricerca” presso l’Azienda Sanitaria Locale di Reggio Emilia. Ha rappresentato l’Italia nel Comitato Direttivo della Società Europea di Cure Palliative, della quale ha ricoperto anche la carica di Segretario. È autore di numerose pubblicazioni nel campo delle Cure Palliative, aventi come argomento principale la valutazione sia della qualità della vita dei malati e dei familiari che della qualità delle cure.