Palliative Care in Children
Since 2006, the Maruzza Foundation and the European Association of Palliative Care (EAPC) have worked in close collaboration for the promotion and development of child-specific palliative care in Europe and beyond.
With the support of the Foundation, the EAPC Taskforce on Paediatric Palliative Care and, subsequently, the European Steering Committee on Palliative Care in Children (ESC) were created. The publications resulting from the work of these groups of experts in paediatric palliative care; “IMPaCCT: standards for paediatric palliative care in Europe”, and “Palliative Care for Infants, Children and Young People: The Facts”, translated into many different languages have become reference documents for professionals working for the improvement and reorganization of palliative care practices for children in many parts of the world.
Two new EAPC Taskforces, supported by the Maruzza Foundation, were recently constituted by the ESC:
- The EAPC Task Force for the mapping of palliative care services for children and adolescents in Europe, in collaboration with the International Observatory on End of Life Care, is gathering information regarding the provision of Palliative Care for Children and Young People throughout Europe.
- The EAPC Taskforce for the formulation of standardized curricula for medical staff working in Paediatric Palliative Care is working to define core curricula for healthcare professionals working in paediatric palliative care.
The partial results of these EAPC Taskforce projects will be presented during the EAPC Congress to be held in Prague in June 2013.
In March 2006, an international group of 18 palliative care experts and representatives from the Maruzza Lefebvre D’Ovidio Foundation, the Livia Benini Foundation and the ‘No Pain for Children’ Association, met in Trento, Italy to examine strategies and best practices for the care of seriously ill children.
The initiative was acknowledged by the European Association for Palliative Care (EAPC) and, with the backing of the Maruzza Lefebvre D’Ovidio Foundation, an EAPC Taskforce – Palliative Care in Children, was established.
The outcome of the Trento meeting was the publication of a united document for Europe, the IMPaCCT Charter, defining and identifying standards of care for children with life-limiting and terminal illness, recommending that these standards be implemented in all European countries.