Support and share the universal right to Palliative Care: the best solution to guarantee dignity and a better quality of life to older people with advanced chronic conditions or approaching the end of their life.
A world first: religions together for Palliative Care for older people. On March 30th 2017 representatives from all the major religions, human rights activists, doctors, patients and families met in Rome at Pontifical Academy for Life (Vatican City), and created and signed the “Religions of the World Charter for Palliative Care for Older People”: a document of global value.
Meeting to present the Project “Religions of the World Charter: Palliative Care for Older People” and to share the importance of palliative care globally.
Silvia Lefebvre D’Ovidio, who will present this important document before Members of the Scottish Parliament and representatives of the main faiths and religions, commented: “Italy is the first nation to have ratified legislation stipulating the right of babies, children and adolescents (0-18 years) to access dedicated palliative care services appropriate to their age and specific needs. The ‘Religions of the World Charter for Children’s Palliative Care’, conceived and supported by the Maruzza Foundation, represents an important step in the global development and diffusion of this essential care. I am very proud to be a voice speaking out for children’s’ palliative care today in Edinburgh and I am sure that the Scottish initiative will be another important step in raising awareness of this much neglected problem that regards nearly 21 million seriously ill children and their families worldwide.”
The board of trustees of the Maruzza Foundation chose to present the 2016 Vittorio Ventafridda award to Joan Marston. The award was presented during the opening ceremony of the 3rd congress on paediatric palliative care: a global gathering on the 16th november 2016.
VITTORIO VENTAFRIDDA AWARD 2016 TO JOAN MARSTON
Since her graduation in Nursing and Social Science, Joan Marston, has been actively involved for more than 20 years in the promotion and organization of children’s palliative care, with a special attention to the development of dedicated services in the African Continent.
As Executive Director of Bloemfontein Hospice and Founder of the Sunflower Children’s Hospice, she promoted the regional St Nicholas Bana Pele Network, for children with life-limiting illness.
As the National Pediatric Development Manager for the Hospice Palliative Care Association of South Africa (HPCA), Joan and her team developed a strategy for a national network of services, stimulating a considerable increase in the number of children’s palliative care services in South Africa, Tanzania and Uganda.
Besides her particular attention to the needs of seriously ill children in developing countries, Joan has significantly contributed to the development of Children’s Palliative Care worldwide, by establishing in 2005, together with her Colleagues, the International Children’s Palliative Care Network (ICPCN). Today, the ICPCN has members in over 100 countries.
As the first Chair of the ICPCN Steering Committee and then subsequently as its first Chief Executive, she has become one of the most recognized authorities and committed advocates for the right to access children’s palliative care and pain management globally.
With unlimited energy and passion Joan, who recently became a Global Ambassador for Children’s Palliative Care, with a particular focus on children in humanitarian situations, continues to be actively involved in promoting the development, creation and consolidation of children’s palliative care services throughout the world, with the conviction that global access to children’s palliative care can be achieved worldwide through shared knowledge, the best use of available resources, and by working together for a common goal.
On behalf of the many children and their families who have benefited from her invaluable work and in recognition of her outstanding professional and untiring dedication to the promotion and organization of palliative care services for children, the Maruzza Foundation’s Board of Trustees is happy and honoured to confer the Vittorio Ventafridda Award 2016 to Joan Marston.
Here’s a Video of the some moments of the 3rd Congress on Paediatric Palliative Care – A Global Gathering; An acclaimed international platform offering numerous opportunities for professional development and cross-cultural networking.
The Religions of the World Charter continues advocate the global right to children’s palliative care. It is now available in French. you can read, download and share it at http://religionsworldcharter.maruzza.org/translations
The Charter for the Rights of the Dying Child, proposed by a team of Italian experts (doctors, nurses, psychologists, philosophers, ethicists, legal experts, parents, journalists) and peer-reviewed by a panel of international experts, was drawn up with the aim of highlighting the rights of young patients that age, condition, culture, location and time, can not, nor should not, undermine.
The purpose of the Charter is to provide an easily comprehensible tool that proposes elements for consideration and conduct and offers suggestions and solutions that can be applied in any clinical or environmental circumstance with the aim of safeguarding respect for the child’s rights and dignity in any setting or situation.
Click here for more info.
You can now read, download and share the Charter in six different languages: English, Spanish, Arabic, Portuguese and German. Join us in supporting global access to children’s palliative care! Sign now!