In Italy, from the next academic year, palliative care and pain management will be fully integrated into all medical graduate courses!
16th-17th Jan 2018. The Maruzza Foundation arrives in the United Arab Emirates.
The Maruzza Foundation participated at the Forum on Essential Medicines for Children with Cancers in Sharjah UAE, organized by Friends of Cancer Patients (FoCP).
The two-day Sharjah Forum saw the participation of 60 senior officials from international health organizations, numerous medical/healthcare experts and the heads of NGOs from around the world who came together to call on the global community to provide, particularly in low and middle income countries, access to treatments for children suffering from cancer.
19th January 2018 – The Maruzza Onlus Foundation was represented at a private audience with the President of the Republic and the main authorities on palliative care
Click here to consult the photographic archive of the Presidency of the Republic.
01/17/2018 [press release of the Italian Palliative Care Federation and the Palliative Care Society (SICP).]
On the 19th January at 12.00 at the Quirinal Palace, the President of the Republic, Sergio Mattarella, will receive the Board of Directors of the Italian Society of Palliative Care, the Italian Palliative Care Federation and a extensive representation of the Palliative Care sector in Italy. This audience is an acknowledgment of the prominence that Palliative Care both socially and in healthcare has attained in our country through the treatment of patients with advanced and terminal illness and the propagation of a culture of holistic care for vulnerable persons.
During the meeting, President Mattarella will take act of the results achieved so far and the critical issues that impede the standardization of Palliative Care delivery throughout the country.
Support and share the universal right to Palliative Care: the best solution to guarantee dignity and a better quality of life to older people with advanced chronic conditions or approaching the end of their life.
A world first: religions together for Palliative Care for older people. On March 30th 2017 representatives from all the major religions, human rights activists, doctors, patients and families met in Rome at Pontifical Academy for Life (Vatican City), and created and signed the “Religions of the World Charter for Palliative Care for Older People”: a document of global value.
Meeting to present the Project “Religions of the World Charter: Palliative Care for Older People” and to share the importance of palliative care globally.
Silvia Lefebvre D’Ovidio, who will present this important document before Members of the Scottish Parliament and representatives of the main faiths and religions, commented: “Italy is the first nation to have ratified legislation stipulating the right of babies, children and adolescents (0-18 years) to access dedicated palliative care services appropriate to their age and specific needs. The ‘Religions of the World Charter for Children’s Palliative Care’, conceived and supported by the Maruzza Foundation, represents an important step in the global development and diffusion of this essential care. I am very proud to be a voice speaking out for children’s’ palliative care today in Edinburgh and I am sure that the Scottish initiative will be another important step in raising awareness of this much neglected problem that regards nearly 21 million seriously ill children and their families worldwide.”
The board of trustees of the Maruzza Foundation chose to present the 2016 Vittorio Ventafridda award to Joan Marston. The award was presented during the opening ceremony of the 3rd congress on paediatric palliative care: a global gathering on the 16th november 2016.
VITTORIO VENTAFRIDDA AWARD 2016 TO JOAN MARSTON
Since her graduation in Nursing and Social Science, Joan Marston, has been actively involved for more than 20 years in the promotion and organization of children’s palliative care, with a special attention to the development of dedicated services in the African Continent.
As Executive Director of Bloemfontein Hospice and Founder of the Sunflower Children’s Hospice, she promoted the regional St Nicholas Bana Pele Network, for children with life-limiting illness.
As the National Pediatric Development Manager for the Hospice Palliative Care Association of South Africa (HPCA), Joan and her team developed a strategy for a national network of services, stimulating a considerable increase in the number of children’s palliative care services in South Africa, Tanzania and Uganda.
Besides her particular attention to the needs of seriously ill children in developing countries, Joan has significantly contributed to the development of Children’s Palliative Care worldwide, by establishing in 2005, together with her Colleagues, the International Children’s Palliative Care Network (ICPCN). Today, the ICPCN has members in over 100 countries.
As the first Chair of the ICPCN Steering Committee and then subsequently as its first Chief Executive, she has become one of the most recognized authorities and committed advocates for the right to access children’s palliative care and pain management globally.
With unlimited energy and passion Joan, who recently became a Global Ambassador for Children’s Palliative Care, with a particular focus on children in humanitarian situations, continues to be actively involved in promoting the development, creation and consolidation of children’s palliative care services throughout the world, with the conviction that global access to children’s palliative care can be achieved worldwide through shared knowledge, the best use of available resources, and by working together for a common goal.
On behalf of the many children and their families who have benefited from her invaluable work and in recognition of her outstanding professional and untiring dedication to the promotion and organization of palliative care services for children, the Maruzza Foundation’s Board of Trustees is happy and honoured to confer the Vittorio Ventafridda Award 2016 to Joan Marston.
Here’s a Video of the some moments of the 3rd Congress on Paediatric Palliative Care – A Global Gathering; An acclaimed international platform offering numerous opportunities for professional development and cross-cultural networking.